ME/CFS is a severe, complex, acquired illness with numerous symptoms related to the dysfunction of the brain, gastro-intestinal, immune, endocrine and cardiac systems. Without appropriate management, the condition can have an extreme impact on an individual limiting the capacity to lead an independent, healthy and fulfilling life. While the range of symptoms and severity of the condition is quite broad the lack of clear biomarkers and clinical evidence for the condition makes diagnosis of ME/CFS difficult. Additionally, with limited awareness among the community and clinical profession the condition is widely misunderstood and appropriate treatment and management therefore remain challenging.
It is fundamental to the well-being of those impacted by ME/CFS that the condition is more widely recognized to facilitate enhanced availability and access to effective diagnosis, treatment and management.
Our efforts encompass peer support groups, Health Promotion activities, awareness and fundraising activities, advocacy, seminars and our dedicated Member information service. Information about our progress and support is also delivered through our quarterly Emerge Journal, a key avenue for sharing information and engaging our Members.
We are determined to strengthen the national response to ME/CFS and welcome and encourage all State and Territory organisations, communities and individuals to join with us as we move forward with hope, vigour and a commitment to lead.