ME/CFS is a severe, complex, acquired illness with numerous symptoms related to the dysfunction of the brain, gastro-intestinal, immune, endocrine and cardiac systems. Without appropriate management, the condition can have an extreme impact on an individual limiting the capacity to lead an independent, healthy and fulfilling life. While the range of symptoms and severity of the condition is quite broad the lack of clear biomarkers and clinical evidence for the condition makes diagnosis of ME/CFS difficult. Additionally, with limited awareness among the community and clinical profession the condition is widely misunderstood and appropriate treatment and management therefore remain challenging.
It is fundamental to the well-being of those impacted by ME/CFS that the condition is more widely recognized to facilitate enhanced availability and access to effective diagnosis, treatment and management.
Emerge Australia has a small part-time team of paid staff and a wide circle of amazing allies and volunteers. Here are just some of the things we do at Emerge Australia to challenge misunderstanding and ignorance about the condition:
- We educate people with the condition, the wider community and healthcare practitioners about ME/CFS
- We provide information about ways that people with the condition can access various social and financial supports
- We lobby and advocate to improve the situation in Australia (and internationally) for people with ME/CFS
- We produce a flagship quarterly journal ‘The Emerge Journal’ which is professionally edited. It includes a mixture of ‘hard science’ updates and member stories from with the community. The Emerge Journal is a key avenue for sharing information and engaging our Members.
We are determined to strengthen the national response to ME/CFS and welcome and encourage all State and Territory organisations, communities and individuals to join with us as we move forward with hope, vigour and a commitment to lead.
We are a member-led organisation and our members are what gives Emerge Australia the impetus, direction and drive to continue our work. By joining (& staying with!) the Society, you will be helping to advance the cause for others with ME/CFS and related neuroimmune conditions. If you are not a member already please do think about signing up for membership here.