Chronic fatigue syndrome chronically underfunded – The WIRE

On Tuesday evening this week (23/2/16), Emerge President Sally Missing, Senator Scott Ludlam and ME patient Sasha Nimmo, were interviewed by The Wire as a follow up to the questions raised at the Senate Estimates the previous fortnight.

Chronic Fatigue Syndrome / Myalgic Encephalomyelitis affects up to 242,000 Australians, yet research into the condition is seriously underfunded in Australia, according to Greens Senator Scott Ludlam and advocacy group, Emerge Australia. The Department of Health revealed in Senate Estimates only $1.6 million had been spent on research in Australia over the past 16 years. CFS/ME, also known as Post-Viral Fatigue Syndrome, was first recognised by the World Heath Organisation in 1969, yet little progress has been made in terms of effective treatment.

Participating in such an opportunity supports Emerge Australia’s endeavour to raise awareness and educate the broader community on the condition whilst reinforcing the need for targetted resourcing to fund much needed medical research, advocacy, education and support services for the estimated 1% of our population effected by the condition.

Emerge Australia encourages our members and other people in our community with the condition to consider sharing your personal story. You could write a small piece or let us know that you would be happy to have someone interview you as Sasha did this week. The Emerge team will always provide you with support to participate in these types of activities. To start a conversation drop us a line by completing our Community Activitist EOI form, email information@emerge.org.au or simply give the office a call 03 9529 1344, we would love to hear from you.

The Wire is a daily independent current affairs program broadcast exclusively on Community and Indigenous radio stations around Australia.  The radio interview can be listened to online via this link and clicking on the ‘story audio’ text on the page or via a podcast.

This media broadcast was produced by Jessica Smalley and Catherine Zengerer.

 

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