If you’re joining us for the NHMRC Public Consultation ‘read-a-long’ we’ve put together this detailed breakdown of the schedule. This is to give you a clear idea of when we will be ‘releasing’ each part, so you can manage your time however it works best for you.
Week 1: 16th January to 22nd January – the first third is ‘released’. This part contains the Executive Summary, and sections 1, 2, and 3. It also has all the references for these sections. As you work through the material, note down your likes & revision suggestions for the first third.
Week 2: 23rd January to 29th January – the second third is ‘released’. This part contains section 4. It also has all the references for this section. As you work through the material, note down your likes & revision suggestions for the second third.
Week 3: 30th January to 5th February – the final third is ‘released’. This part contains section 5, and the Summary. It also has all the references for these sections. As you work through the material, note down your likes & revision suggestions for the final third.
Week 4: 6th February to 15th February – consolidation and finalisation of your notes (with our help) ready to submit feedback to the NHMRC Committee.
Week 5: 18th February – submission deadline and Emerge’s top likes and revision suggestions.
The questions you will be ultimately answering on the NHMRC page are:
1) Does the draft Report provide an accurate summary of:
- the difficulties faced by ME/CFS patients in receiving clinical care
- the challenges facing clinicians in providing care when there is lack of clarity on diagnostic and management tools, and minimal professional education about the condition?
2) Do the research and clinical guidance recommendations accurately:
- address the specific needs of the ME/CFS community
- provide an accurate representation of the current gaps in research
- inform the CEO of research options and clinical guidance needs that are relevant for ME/CFS patients?
The aim is to use your notes to help guide your responses to the questions. Remember, this consultation asks for YOUR thoughts, so there are no right or wrong answers.
If you find that you’re moving really fast through the read-a-long and you’d rather just have the whole document, you can download the complete document here.
As this is a ‘read-a-long’ with the community, we have set up a pinned Facebook post where you can share your thoughts and questions in the comments section. You are absolutely welcome to join in with comments, or just work through the process without social media as works best for you.
Would you like an email when the next third of the report is released (and a submission deadline reminder)? Sign up here