For people with ME/CFS diagnosed with food intolerance, the following organisations and websites listed below are useful for more information. Refer to ‘Testing’ for more information on tests available for diagnosing food intolerance (such as hydrogen breath-testing for fructose and lactose intolerance).
Dieticians can provide support in diet management for ME/CFS patients with a positive result for food malabsorption. GPs can arrange a Team Care Arrangement for Medicare rebates for up to five visits per year with allied health professionals including dieticians.
While Coeliac Australia is an organisation specifically for those people with Coeliac Disease, their website has a search function to find restaurants with gluten-free options.
Diet Solutions is a group of dieticians with expertise in the management of gastrointestinal disorders including fructose malabsorption and the low FODMAP diet. Diet Solutions is located in Glen Iris.
Shepherd Works is a dietician practice headed by Dr Sue Shepherd which specialises in services for people with food intolerances (such as fructose malabsorption and lactose intolerance), irritable bowel syndrome and coeliac disease. Services include dietary consultations, supermarket tours and cooking demonstrations. Dr Shepherd has also written a number of cookbooks for people with food intolerances which include wheat-free, allergy-free, gluten-free and low FODMAP recipes.
Ph: (03) 9890 4911
Sunnybrook Health foods
Sunnybrook Health Foods is located in Ormond, Victoria, but also has an online shop. Largest range of gluten free products in Australia and can do world-wide delivery.
Ph: (03) 9578 6400
The Monash University Low FODMAP Diet App
Useful smart phone app for people with Irritable Bowel Syndrome and other food sensitivities such as lactose intolerance and fructose malabsorption. The app provides a guide on how well different foods can be tolerated depending on each individual’s food sensitivities. Also includes recipes. Available for iPhone and Android. Cost of app goes towards further research.