As debates on the ethics, dynamics and even legal repercussions of online patient narratives become more prevalent, a recent international, interdisciplinary conference in Belfast Ireland, directed focus within the program on how those with life-threatening, incurable or long term chronic illness use social media as a tool for therapeutic connection and communication.
Sally Burch a Patient Blogger, presented her ME/CFS story at the conference on the topic – The Use of Patient Blogs as a Care Resource. Her QUB ePatient Conference presentation is available to view via the attached video link.
Emerge Australia is keen to seek feedback from our members and the broader community, who may be interested in sharing their ME/CFS story with others. There are a number of different ways that this could take place and we would like to be able to support the process. Send an email to firstname.lastname@example.org or leave a phone message for us to follow up with you P: 9529 1500