Understanding and supporting young people living with ME/CFS

On the 24th July 2014, we held an afternoon seminar focused on young people and their carers, affected by ME/CFS.

The seminar aimed to increase knowledge, awareness and understanding in the following areas:

  • The signs and symptoms of ME
  • Precipitating factors
  • Research findings
  • Management and treatment approaches
  • Appreciation of grief and loss underpinning ME


As well as provide tips and strategies

  • To assist schools and health professionals working with a young person living with ME
  • How to overcome and manage the emotional rollercoaster of ME
  • Practical Support and services available to carers, young people and families



  • Understanding ME/CFS in young people – Dr Kathy Rowe  (Video & Slides)
  • The emotional impact of living with ME/CFS –  Dr Kathy Rowe  (Video)
    • (Dr Rowe kindly stepped in for our original speaker who was unable to attend due to a personal emergency)
  • Carers Victoria: Support services for families and carers – Ms Annie Keogh  (Video & Slides)


About the speakers


Dr Kathy Rowe, Royal Children’s Hospital

Over the past 40 years, Dr Kathy Rowe has achieved outstanding national, and international recognition for her work in adolescent health. She is a consultant paediatrician at the Royal Children’s Hospital and an expert in the area of ME/cfs and the relationship between health and education. She has learned much from her extensive cohort and feedback from the young people with this illness.

Dr Lisa Ellis (psychologist) (unable to attend)

Lisa has worked with adolescents for over 10 years. In the last four she has worked with ME/CFS patients at the Active Health Clinic where she has gained an in depth knowledge of ME/CFS. Lisa’s work concentrates on coping strategies of living with a chronic illness and related anxiety, depression, relationship issues, sleep difficulties, stress management, problem solving, conflict resolution, goal setting and motivation.

Ms Annie Keogh, Carers Victoria

Ms Keogh  is an experienced adult educator, group facilitator and public speaker. At Carers Victoria she works with family carers to improve their health and wellbeing and with professionals to increase their understanding of the issues facing family carers


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