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On Monday 18 November at Australian Parliament House, parliamentarians joined national ME/CFS organisations, clinicians, research and the patient community to spotlight an urgent call for action. The voices of the 250,000 Australians living with ME/CFS can no longer be ignored. It is the right of every Australian living with ME/CFS to equitably access best-practice health care and essential supports.
The Honourable Mark Butler MP, Minister for Health and Aged Care, officially opened the event. Anne Wilson, CEO of Emerge Australia, thanked the Minister for his leadership in enabling Australia’s new ME/CFS Clinical Guidelines through a $1.1 million funding commitment earlier this year.
Mr Alan Singh, Executive Director, Research Quality and Advice at National Health and Medical Research Council, provided an update on the progress of the guidelines. These evidence-based guidelines will make a profound difference in the early diagnosis and safe management of the condition, based on the latest scientific understanding.
This event underscored the pivotal role Parliamentarians can play in championing the needs of the ME/CFS community.
Despite all this, we still struggle to have the impact and severity of ME/CFS acknowledged in our community.
Your financial support is vital to enabling us to help those with ME/CFS with Telehealth and Support Services as well as providing key resources to the community.
At the heart of our mission lies a deep commitment to unearthing new insights about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS).
We recognise the urgent need to expand our understanding of this complex and often misunderstood condition. To this end, we tirelessly pursue research initiatives, collaborating with leading experts and institutions.
Giving a voice to the unseen and unheard.
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