Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome (ME/CFS) is a severe, complex, acquired illness. Symptoms can include issues with; brain function, the gut, the immune, endocrine and cardiac systems.
Diagnosis of ME/CFS is difficult and more research needs to be undertaken. The condition is not well understood in the general community or in clinical professions. In fact, it is widely misunderstood and finding appropriate treatment and management tools is often very difficult.
The condition can have an extreme impact on a person and can limit their capacity to lead an independent, healthy and fulfilling life. Good management can help with some of the effects of the condition particularly in more mild/moderate cases, but there is no doubt that this condition changes the lives of those affected.
It is vitally important to the well-being of people affected by ME/CFS that the condition be widely recognised. This will improve the availability and access to effective diagnosis, treatment and management. In the meantime there are some services and supports available through membership with Emerge Australia.
Petition to add ME/CFS to List B of the National Disability Insurance Scheme
Sign the petition to demand better access to the NDIS for people with ME/CFS!
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