Health Minister Greg Hunt announces $3million for research into ME/CFS

2019 Health and Wellbeing Survey – Now open for responses!

Talking about ME – please write to your MP

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What is ME/CFS?

Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome (ME/CFS) is a severe, complex, acquired illness. Symptoms can include issues with; brain function, the gut, the immune, endocrine and cardiac systems.

Diagnosis

Diagnosis of ME/CFS is difficult and more research needs to be undertaken. The condition is not well understood in the general community or in clinical professions. In fact, it is widely misunderstood and finding appropriate treatment and management tools is often very difficult.

Impact

The condition can have an extreme impact on a person and can limit their capacity to lead an independent, healthy and fulfilling life. Good management can help with some of the effects of the condition particularly in more mild/moderate cases, but there is no doubt that this condition changes the lives of those affected.

Support

It is vitally important to the well-being of people affected by ME/CFS that the condition be widely recognised. This will improve the availability and access to effective diagnosis, treatment and management. In the meantime there are some services and supports available through membership with Emerge Australia.

About Emerge Australia

We provide education, information and community level advocacy about ME/CFS.

Be involved

If you would like to be involved in making a noise about ME/CFS, become a member or become a community activist now.

2019 Health and Wellbeing Survey

The 2019 Health and Wellbeing Survey is now open for responses!

Talking about ME – please write to your MP

Help us to make ME/CFS visible by writing a letter!

Write a letter to your local Federal Member of Parliament, and tell them what ME/CFS means to you, and how they can help.

 

Unrest film poster

Unrest film

At 28, Harvard PhD student Jennifer Brea is about to marry the love of her life when she is struck down by a sudden fever that leaves her bedridden. Diagnosed with myalgic encephalomyelitis (ME), commonly known as chronic fatigue syndrome (CFS), Brea reaches out online and discovers a hidden community of millions who, like her, are confined at home by the ravages of ME.
Winner of the Special Jury Prize at the Sundance Film Festival in 2017.

Other links

Watch Unrest on Netflix
Watch Unrest on Amazon Prime
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