Published 22 October 2026 The National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 became law on 20 August 2026. This means there will be gradual changes to: Who can access the NDIS What supports the NDIS will fund How support needs are assessed and how plan budgets are made How

Read the full October Newsletter Welcome everyone to the October edition of the Emerge Australia newsletter. I cannot recall a busier time of year.  Some of our work has involved the following: Developing or responding to government submissions Creating and launching patient resources eg: Patient Decision Aid on exercise Responding to your calls for support

Published 15 October 2026 Emerge Australia recently hosted an information and question-and-answer session with Megan Gilmour, co-founder and CEO of MissingSchool. The session explored practical ways families and schools can work together to support children and young people living with ME/CFS or long COVID who require reasonable adjustments and/or miss school often or for prolonged

Published: 8 October 2026 From 1 November 2026, Medicare allows GPs to prepare or review a Chronic Condition Management Plan over the phone. This means some patients with long-term health conditions may not need to attend the clinic in person for these appointments. What is a Chronic Condition Management Plan? A Chronic Condition Management Plan

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.

Published: 24 September 2026 Read the article on The Australian website

Read the full September Newsletter Welcome everyone to the September edition of the Emerge Australia newsletter. What a month it has been! I was privileged to be able to attend the inaugural International Society for Long COVID (ISLC) and Post-Acute Infection Syndromes (PAIS) conference held in Amsterdam. This is the first international conference I have

Published: 3 September 2026 Melody Teh, Health and Beauty Editor of The Australian Women’s Weekly shares the story of Lily Schubert, who became unwell with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) at 16 and spent six years bed-bound. The article explores the profound impact of severe ME/CFS, including sensory sensitivity, post-exertional malaise (PEM), delayed diagnosis and

Published: 14 August 2026 From 1 October 2026, access to free COVID-19 vaccines will only be available to specific groups at higher risk of severe illness. If you have been thinking about getting a COVID-19 vaccine or booster, now is a good time to speak with your GP, pharmacist or healthcare provider about your options

Read the full August Newsletter Welcome everyone to the August edition of the Emerge Australia newsletter. It has been another busy month at Emerge Australia, with our Count ME campaign helping us continue conversations with Members of Parliament and their offices about the need for better recognition, data, research and support for people with ME/CFS.

Published: 13 August 2026 For the first time in more than a decade, myalgic encephalomyelitis/chronic fatigue syndrome will be included in the Australian Burden of Disease Study. ME/CFS was removed from the AIHW’s authoritative measure of health loss (as measured by disability-adjusted life years) in 2011 and was last included as a standalone condition in

Published: 4 August 2026 Chronic fatigue syndrome and long COVID are two of the most under-diagnosed and debilitating conditions. Now for the first time, Western Australians are being urged to roll up their sleeves to help find answers, sooner. Seventeen collection sites have opened across Western Australia, making it easier for people to contribute blood