Our News Articles

Hello to all our supporters and readers of the Emerge Australia newsletter! As World ME Day is around the corner we are excited to provide information on what we have been up to since our last newsletter. Check out details on our theme Stop. Rest. Pace. and our 2024 campaign. On Thursday 9 May we

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.

Emerge Australia shares the concerns of ME/CFS patients, carers, researchers and informed clinicians with the release of the updated RACGP HANDI Guide, “Incremental physical activity for chronic fatigue syndrome/myalgic encephalomyelitis”. In 2024, ME/CFS patients should not be subjected to harmful and outdated practices. In particular, we note that the updated HANDI guide:  Isn’t evidence-based. It

Access the full survey here Download the full survey here The Department of Health and Aged Care is conducting a public consultation on the refresh of the National Strategic Framework for Chronic Conditions. They are seeking the views of a wide range of stakeholder groups, including people living with ME/CFS, long COVID and other chronic

Hello to all our supporters and readers of the Emerge Australia newsletter! What a month it has been! As most of you already are aware, our Emerge Australia team, with the support of our loyal donors and the Open Medicine Foundation, held a Roundtable event at Parliament House on 27 March 2024. Shining a light

Published: 25 March 2024 Almost a year after a parliamentary committee recommended more funding for ME/CFS support, advocates say the community’s suffering is “being compounded on all levels”. Emerge Australia has called on the federal government to unlock research and funding for those suffering from ME/CFS.The organisation recommends establishing a nationally coordinated research program into

Media Release: 27 March 2024 Sick and Tired: Casting a long shadow long COVID Inquiry 2023   Recommendation 8: The Committee recommends funding be made available for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) research and patient support and that this funding should be allocated in consultation with peak bodies for ME/CFS and with note of the recommendations

Hello to all our supporters and readers of the Emerge Australia newsletter! It’s been an unbelievably busy period in the last month and hard to believe that we are almost at Easter 2024! So much happening and so little time. Below you will read about our Round Table meeting at Parliament House in Canberra on

Published: 16 March 2024 Miquette Abercrombie describes the COVID-19 infection that changed her life as “straightforward”, but what happened afterwards was anything but. Over the 700 days since her infection, which was in April 2022, she said she has experienced hundreds of different symptoms, from fatigue, brain fog, changes to her voice and heart issues.

Published: 18 March 2024 Lynne and Michael Harris have been caring for their son since he developed ME/CFS five years ago. He lies for 24 hours a day in the dark, in silence, wearing an eye mask and earplugs. Any variation to this is a strain on his body, incredibly fatiguing and painful. Dan has

Published: 20 February 2024 It’s been four years since Tim Stannard could smell or taste anything normally, thanks to what he originally thought was “a little flu”.  “It’s debilitating. It’s depressing. Over four years now, I’ve suffered daily symptoms,” he said. Months after returning to Australia, Mr Stannard said his symptoms were getting worse.  

Hello to all our supporters and readers of the Emerge Australia newsletter! Can you believe we are already half way through February 2024? It has been a busy start to a new year that we already know will be filled with many opportunities and challenges for Emerge Australia.     Of prime importance to us

Published: 12 February 2024 The ABC’s Philip Clark was joined by Dr Richard Schloeffel OAM, Emerge Australia’s CEO Anne Wilson, and Professor Paul Fisher in discussion around Australians with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 75% of those who are women. For many years these women were fobbed off. Now “long COVID”, which is akin to ME/CFS,

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.

Hello to all our supporters and readers of the Emerge Australia newsletter! Welcome to our first newsletter for 2024. As the calendar turns to a new year, it’s a time of reflection, hope, and renewed commitment. 2023 was a year of significant strides and achievements, thanks to your unwavering support and the collective effort of our

Published: 9 January 2024 The recently published NDIS Review report, Working together to deliver the NDIS, recommends significant changes to the Scheme.  Emerge Australia welcomes the report, recognising the Scheme is not working for many people with disability, “People living with ME/CFS, long COVID and other post-infection diseases welcome the NDIS Review recommendation that NDIS

Hello to all our supporters and readers of the Emerge Australia newsletter! It is hard to believe this is our last newsletter for 2023.  And what an amazing year it has been thanks to you our community, our wonderful donors, our philanthropic partners and of course the support of both federal and state governments. This

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.

Published: 2nd December 2023 This story was presented by Samantha Tindall, from Wollongong, under an IDPWD program to get people living with a disability to produce a story about themselves or others. Samantha lives with ME/CFS. She spoke to Tilly, who also has ME/CFS, and Emerge Australia Chief Executive Officer Anne Wilson to shine a

Published: 19 November 2023 Emerge Australia’s Nurse Educator Kate Herbert spoke with the ABC about the inclusivity of people living with a chronic illness, such as ME/CFS, are neurodivergent, or have a disability, in future disaster and severe weather event plans. Ms Herbert wants to start a conversation about how people who fall into those

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and disabling disease that affects many parts of the body, including the brain and muscles, as well as the digestive, immune and cardiac systems, among others.

Hello to all our supporters and readers of the Emerge Australia newsletter! Welcome everyone to the second-last newsletter for the year. The past month has been filled with new developments.  We completed our first ever podcast series in which patients, carers and clinicians shared with you all their very personal experiences with ME/CFS and long

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and disabling disease that affects many parts of the body, including the brain and muscles, as well as the digestive, immune and cardiac systems, among others.

Published: 1 November 2023 Emerge Australia, the national patient organisation for people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and long COVID, says a recommendation to reduce access to telehealth services further disadvantages people already struggling to access health care. The Medicare Benefits Schedule Review Advisory Committee (MRAC) has supported the removal of initial non-GP

Published: 19 October 2023 An Australian registry of people living with debilitating Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) will be expanded to include people with long COVID. AusME Registry and Biobank, a collaboration between national patient advocacy organisation Emerge Australia and universities, is recruiting people with post-infection diseases to join research efforts to find a cure

Published: October 12 2023 AusME Registry and Biobank expands research into ME/CFS to include long COVID Call for participants to help unlock the mystery of invisible illness A registry of people living with debilitating Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) will be expanded to include people with long COVID. AusME Registry and Biobank, a collaboration between

Published: 18 October 2023 Emerge Australia, a national advocacy group for myalgic encephalomyelitis/chronic fatigue syndrome, is partnering with universities across the country to expand its research to long COVID as well as ME/CFS by inviting people over 12 years old with post-infection diseases to enrol on the AusME registry “People can join the AusME registry

Hello to all our supporters and readers of the Emerge Australia newsletter! At the time of writing this introduction to our newsletter I am dumbfounded as to how quickly the end of the year has come around.  Do you know it is only 83 days to Christmas?  That is so scary given the work to

The final report from the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability was released in late September 2023. The Royal Commission ran for four years, held 32 public hearings with 837 witnesses and private hearings with 1785 witnesses, and received 7922 submissions. The final report is in 12 volumes and

Published: 5 October 2023 New research from RMIT University in Melbourne says Australia is lagging behind in how it deals with the impact of long COVID. Research suggests up to 40 per cent of people who contract COVID-19 experience lingering symptoms like fatigue, shortness of breath and brain fog. Emerge Australia CEO Anne Wilson spoke