Pilot Project
Emerge Australia represents people living with ME/CFS and long COVID. We believe it’s important to listen to people living with these conditions and their carers.
In 2025, we are starting a project to learn how your experiences can help guide our work. To inform it, we are asking our community to share their ideas through a survey.
We plan to
- Work with people who have ME/CFS and long COVID to create a way for them to share their experience with us.
- Test and improve this process to make sure it works for everyone.
What we want to achieve
The project will be designed with help from our ME/CFS and long COVID community. Emerge Australia hopes that people will:
- Advise us about their experiences
- Tell us what is important to them
- Help us with our advocacy and policy work
- Take part in designing research
- Make suggestions to improve health and wellbeing for people with ME/CFS and long COVID and their carers.
With all these ideas, we hope to make a difference and better meet the needs of our community.
How will we do this?
First, we have written a survey. The survey asks for your opinions and how we can help you participate in a way that works best for you.
Next Steps
If you have ME/CFS or long COVID, or if you care for someone who does, we invite you to fill out the survey. It will only take about 10 minutes.
We will then ask people from our community to join the project in early 2025
Watch this space!!
