The impact of ME/CFS can be devastating, leaving 25% of patients housebound or bedbound, with many people unable to work or participate in community life. People living with ME/CFS often feel invisible due to the unknown cause of the condition, lack of effective treatments and limited community awareness, leading many to ‘go missing’ from their own lives. ME/CFS is such an impactful illness for the way it debilitates and restrains people from going about parts of daily life that to most is seen as normal. Things like keeping clean, brushing hair and teeth, and showering are often unable to be…