Starting a health journey often begins with symptoms that lead you to seek help, followed by a diagnosis and the challenge of adapting to a new physical reality. For those with conditions like ME/CFS and long COVID, even minimal exertion can worsen symptoms and reduce both physical and cognitive capacity, causing post-exertional malaise (PEM). Understanding the condition is essential, and learning about it can help you manage your health as effectively as possible in this challenging situation.
Once diagnosed, accessing practical supports becomes vital to managing the disabling impacts of the condition. Many aspects of life can be disrupted, including family, school, work, and friendships. Emotional support is crucial during the transition from living in a healthy body to adapting to one with significant energy limitations. Whether through support groups or loved ones, reaching out can make coping easier.
Carers and allies, including friends, colleagues, and educational professionals, play an essential role. When those around you understand the situation, they can offer meaningful support, patience, and empathy. Educating carers and allies helps reduce stigma and builds a more supportive environment, enabling individuals to navigate their health journey with greater understanding and connection.
These conditions are currently not routinely taught in universities, which can make supporting patients very difficult. We offer free education and practical resources to help doctors and health professionals build knowledge, confidence, and capacity. Please feel free to share our Health Professionals webpage using this link.