Many symptoms of ME/CFS can make communicating difficult. Some people who live with ME/CFS report that at times they struggle to recall information, lose their train of thought easily and find comprehending and processing new information difficult.
To manage your ME/CFS well, you will need a number of different healthcare professionals to help you deal with your ME/CFS symptoms and any other health conditions you may have.
Many doctors and other healthcare professionals do not specialise in ME/CFS, but they can play a valuable part in your care and health management.
Many symptoms of ME/CFS can make communicating difficult. Some people who live with ME/CFS report that at times they struggle to recall information, lose their train of thought easily and find comprehending and processing new information difficult.
Ricky Buchanan worked with Emerge Australia to write this in 2021 and was too ill to update or add to it in 2022, as her severe ME/CFS has worsened. Ricky has again kindly allowed us to share her tips in 2023. Ricky describes herself as a Geek-Creative-Writer-Disabled-Bedridden-Queer-Internet Citizen. Ricky has been a severe ME/CFS patient
Advance care planning promotes care that is consistent with a person’s goals, values, beliefs and preferences. It prepares the person and others to plan for future health care, for a time when the person may no longer be able to communicate those decisions themselves.
Giving a voice to the unseen and unheard.
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