Resources for Carers of Someone with ME/CFS
If you care for (usually) a family member (son, daughter, brother, sister, mother, father and so on) who unfortunately has ME/CFS there are resources to help you in your carer duties and help you obtain some respite when needed.
From the Carers Australia website “Carers are people who provide unpaid care and support to family members and friends who have a disability, mental illness, chronic condition, terminal illness, an alcohol or other drug issue or who are frail aged.” and “Australia has about 2.7 million carers, 12% of the population. The chances are you personally are a carer, need a carer or know a carer.”
Carers Australia and the network of carers associations in each state and territory’s purpose is to improve the lives of carers. Together Carers Australia provides important services like counselling, advice, advocacy, education and training. They also promote the recognition of carers to governments, businesses and the wider public.
The following websites have resources that are relevant for carers to help in your caring duties:
- Carers Australia
- Young Carers Australia – If you are a young carer you may find some more relevant information for you here. The following Factsheet aims to help Carers in Higher Education, also to be found here.
- Links to State and territory Carers Associations – Contact a Carers Association in your state or territory.
- Australian Government Website about Carers – An site with many links including to those of carers payments at DHS and Commonwealth Respite and Carelink Centres.
- Carer Payments Site at Department of Human Sevices (Centrelink) – An Australian Government website.
- Carers Victoria
- Carers Victoria Factsheets
Caring for someone with ME/CFS or anyone with a chronic illness or disability can sometimes be overwhelming and as any carer can attest, sometimes one just needs a break. Caring for oneself is just as important as one’s primary caring responsibilities. Without doing that, one cannot keep one’s caring commitments.
The following websites have resources for carers to help you get some respite:
- National Respite for Carers Program – An Australian Government Department of Health website.
- Commonwealth Respite and Carelink Centres – You can contact your nearest Centre by calling Freecall 1800 052 222
- Respite Victoria – Specifically for Victoria
- Regional Respite and Carer Support – From Carers Victoria – Again specifically for Victoria – Includes the contact number Freecall 1800 052 222 to be directed to the Carer Respite and Carelink Service in your area.
- Victorian Carer Services Network – Again for carers from Victoria – Includes a service called Respiteseeker where you can search for respite by suburb, postcode etc.
Another way someone with ME/CFS can find social support is via our Connect with ME Peer Support Program. This program aims to improve the health and wellbeing of people affected by ME/CFS by connecting them with peers who are going through similar experiences.