NSW Independent Peer Support Groups

 
Blue Mountains ME/CFS/FM Support Group NSW

Location Mid Mountains Neighbourhood Centre, 9 New Street, Lawson 

Description The group meets monthly in person on the first Thursday: 12 pm till 2 pm, and every third Tuesday via Zoom from 12 pm till 1:30 pm.  

No obligation for participants to attend the entire meeting. You need to be a local, or almost local, to join our support group. We cover far western Sydney and up to Dubbo as well. 

We are supported wonderfully by our neighbourhood centre. They supply a gluten-free morning tea and a free room. We also have a Facebook page, but only for our locals. We have over 150 members, but only between 6 and 12 come to the meeting. We also support West Sydney and West to Dubbo 

 
Illawara ME/CFS, FM & Long COVID Support Group

Location: Illawarra and surrounds. 

We welcome people from other areas who may not have a support group accessible to them otherwise.

Zoom Information Session

  • 1st Saturday each month 11 am – 12 noon

  • An online meeting with a guest speaker or discussion topic, research news, health tips, and welfare news.

  • Involvement by members is welcomed; however, many join and sit or lie quietly, depending on their capacity at the time.

Zoom Quiet Time

  • 3rd Tuesday each month, 11 am – 11:30am

  • A very quiet half hour of poems, breathing, meditation, tapping for those who want connection in a very quiet space.

Zoom Chat

  • 4th Saturday each month, 2 pm – 3 pm

  • An informal chat, facilitated to make sure chatting time is shared.

Cafe Groups 

  • Wollongong – 2nd Thursday each month, 11 am – 12 noon 

  • Kiama – 3rd Thursday each month, 11 am – 12 noon

Description: Supporting people in the Illawarra and surrounding areas with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM), Long COVID, Multiple Chemical Sensitivity (MCS) and other related neuroimmune conditions.

Contact Co-ordinators: Margie & Deirdre

ME/CFS/FM Support Group Newcastle District

Location Newcastle, NSW 

Description Newcastle has a strong local CFS/FM Facebook group with over 150 members. They try to meet a few times a year, however they are a bit short on admins and volunteers to arrange them. Face to face meetings are health (and volunteer) dependent, but the online group response and support is very strong. 

 
Sydney Invisible Illness/Chronic Health Support Group 

Location Glebe and North-West Sydney location

Description Casual chat over coffee / lunch. Majority of group members have ME/CFS/FM.

Contact Russell

 
Tweed Heads (CFS/ME/FMS Support Group) 

Location Tweed Heads

Description We meet on the first Friday of every month except January at 10:30 am in the Activities Room, Home and Community Centre, Cnr Heffron Street and Minjungbal Drive, Tweed Heads South. We have a casual get-together every third Friday at 10:30 am at John Cunningham Park off Boundary Street, Tweed Heads.

We are obliged to charge $5:00 for our first Friday meetings to cover room hire. We have been unable to find free accommodation for our meetings in the area. Tea, coffee and biscuits and a lucky door prize are supplied at no cost. There is a large monitor supplied with the room which we use to show Utube videos relating to me/cfs. Those who are interested usually go for lunch after the meeting.  

Contact Bronwyn

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