Emerge Australia in collaboration with Open Medicine Foundation Australia invites you to listen to a Roundtable facilitated discussion focussing on implementation of Recommendation 8 of the Report: Sick and Tired: Casting a long shadow Long COVID Inquiry 2023
10:00am – Welcome and acknowledgement of country
- Welcome from Anne Wilson, CEO Emerge Australia
- Welcome from William Ranken, Board Chair Open Medicine Foundation Australia
10:09am – Presentation from Dr Mike Freelander MP, Member for Macarthur – Long COVID Inquiry as it relates to ME/CFS
10:17am – Presentation from Simone Eyssens, patient living with the burden of ME/CFS – Patients’ experience, barriers to NDIS access, what is needed
10:25am – Presentation from Dr Christopher Armstrong PhD, Director, Melbourne ME/CFS Collaboration (Open Medicine Foundation Australia) – Cross over in ME/CFS and Long COVID, OMF research progress and research needs
10:33am – Presentation from Dr Mark Donohoe, GP President ACNEM, Founder, Director, Mosman Integrative Medicine – Critical need for clinical education and clinical guidelines
10:41am – Presentation from Tori Sommer, A.(Psych), B.App.Sc.(Chiro) carer for husband living with ME/CFS – Dr Steven Sommer – Carer experience, what is needed – critical role of GP Education and support for carers
10:49am – Presentation from Dr Gabriela Khoury, Burnett Institute – Critical need for further research including current and planned work in immunology mechanisms and biomarkers of post viral syndromes
10:57am – Presentation from Professor Peter Schofield AO, Chair of the Mason Foundation’s National Medical Advisory Panel – Importance of biomedical research in ME/CFS
10 minute Break – Tea & coffee provided
11:11am – Presentation from Erin Godwin, Carer of child with ME/CFS – Challenges in caring for a young person with ME/CFS or Long COVID, barriers to NDIS access
11:19am – Presentation from Senator the Hon Anne Ruston, Shadow Minister for Health and Aged Care, Shadow Minister for Sport and a Liberal Senator for South Australia – Importance of government addressing the needs of patients with ME/CFS
11:27am – Presentation from Professor David Putrino, Director of Rehabilitation Innovation at Icahn School of Medicine at Mount Sinai – Rehabilitation and management in ME/CFS patients
11:35am – Presentation from Professor Paul Fisher, La Trobe University – The cross over in ME/CFS and Long COVID
11:43am – Presentation from Dr Leanne Laajoki, Director, Department of Health and Aged Care – The chronic and complex conditions framework
11:51am – Presentation from Dr Michelle Scoullar, Burnett Institute – The critical needs for children with ME/CFS
10-minute Break
12:12pm – Break into small discussion groups as assigned
- Clinical Guidelines
- Clinical Education
- Research
- Patient Support
12:30pm – Each group reports back to the whole
12:44pm – Remarks from Senator Jordon Steele-John
12:52pm – Closing remarks
13:15pm – Light refreshments and tea & coffee provided
