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Our February 2023

What is the NDIS?

The National Disability Insurance Scheme is designed to give people with disabilities the support they need to live independent, ordinary lives. It is not means tested – anyone with any level of income or assets can apply, as long as they meet the criteria of having a significant functional impairment. The insurance-based scheme provides disability-related

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Two men with ME/CFS sitting at a table talking to a doctor.
Management

Building your healthcare team

To manage your ME/CFS well, you will need a number of different healthcare professionals to help you deal with your ME/CFS symptoms and any other health conditions you may have. 

Many doctors and other healthcare professionals do not specialise in ME/CFS, but they can play a valuable part in your care and health management.

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A stethoscope on top of a bed used for patients with mecfs.
Management

Preparing information for your doctor

Many symptoms of ME/CFS can make communicating difficult. Some people who live with ME/CFS report that at times they struggle to recall information, lose their train of thought easily and find comprehending and processing new information difficult.

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A MECFS patient comfortably resting under a blue blanket.
Management

Living with Severe ME/CFS

Anil van der Zee lives with severe ME and has given permission for Emerge Australia to share his lived experience.    Anil van der Zee May 1, 2023   Before this year, I was too ill for approximately five years, which prevented me from even thinking about anything related to dancing. A mixture of it being

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A magnifying glass inspecting a stack of mecfs documents.
Management

Advanced Care Planning with ME/CFS

Advance care planning promotes care that is consistent with a person’s goals, values, beliefs and preferences. It prepares the person and others to plan for future health care, for a time when the person may no longer be able to communicate those decisions themselves. 

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A woman with mecfs laying in bed.
Position Statement

Pacing and Rest Position Statement

Pacing and rest are individualised and essential management techniques for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Pacing and rest promote safe levels of activity to manage post-exertional malaise (PEM), the hallmark symptom of ME/CFS.

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