Emerge Australia welcomes the Federal Governments announcement that Medicare rebates will be made permanent for online and over-the-phone telehealth services provided by GPs, specialists and allied health practitioners.
ME/CFS is a complex illness and has been misunderstood by doctors and scientists worldwide. As we move forward and learn about ME/CFS there are some important key facts Emerge Australia wants to share.
Emerge Australia uses ME/CFS as an umbrella term. Research has not confirmed whether the illness is one condition, two conditions (ME and CFS), several different conditions or a condition with several subgroups. ME/CFS includes all diagnoses of myalgic encephalomyelitis (ME), chronic fatigue syndrome (CFS), and ME/CFS.
As you continue to learn more about the needs and preferences of your person with ME/CFS, the importance of honouring their autonomy, dignity and independence has most likely become an important consideration for you.
Building a successful caring partnership relies on clear and frequent communication to understand the needs and boundaries of both the person you care for and yourself.
Since becoming a carer of a person living with ME/CFS, you may have made some small or big changes in your life. Self-care is an important part of life but can often be the first thing we stop when life gets busy or priorities change.
As a carer of a person living with ME/CFS there may be times when you are called upon to provide support through advocacy. This could be with healthcare professionals, service providers, workplaces or even within your family or friendship circle.
ME/CFS is a complex and disabling disease that affects many systems of the body. These include, but are not limited to, the brain, muscles, digestive, immune and cardiac systems.
Emerge Australia have compiled a summary of findings from our 2019 survey to support medical practitioners who wish to increase their knowledge of the lived experience of people with ME/CFS.
Lifelong Lockdown: Lessons Learned from the Health and Wellbeing Survey of Australians Living with ME/CFS 2019 paints a detailed picture of the experiences of living with ME/CFS.
The National Disability Insurance Scheme (NDIS) is designed to help support people with disability. Click here to access resources developed to assist people with ME/CFS to understand the NDIS and what is required to apply.
How a diagnosis of myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) is made, the severity scale of ME/CFS, and the importance of early and accurate diagnosis
Emerge Australia conducted the first national health and wellbeing survey of people living with ME/CFS in 2015.
Giving a voice to the unseen and unheard.
Sign up to our newsletter today.