Making connections, changing lives for people affected by ME/CFS and associated conditions.

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#MillionsMissing Melbourne 2019

#MillionsMissing Melbourne 2019 #MillionsMissing is a global campaign for ME health equality. Help us make noise on May 11th, 2019 by joining our Visibility Action in Melbourne at the State […]

Health Minister Greg Hunt announces $3million for research into ME/CFS

Health Minister Greg Hunt has today announced $3m for research into ME/CFS. Minister Hunt notes that “funding will be provided through the National Health and Medical Research Council (NHMRC) to […]

2019 Health and Wellbeing Survey – Now open for responses!

The 2019 Health and Wellbeing Survey has now launched. Open to Australian residents over the age of 18 who are affected by ME/CFS, the survey will ask a series of […]

National Health and Medical Research Council (NHMRC) Draft Report “Read-a-Long” Part Five

Today marks our final post for the NHMRC committee’s draft report into ME/CFS ‘read-a-long’. Firstly, if you’re looking for a comprehensive walk-through guide on how to make your submission ME/CFS […]

National Health and Medical Research Council (NHMRC) Draft Report “Read-a-Long” Part Four

We’ve come to the end of the NHMRC’s draft report into ME/CFS ‘read-a-long’ which means the writing part starts now. If you haven’t been able to read the whole report, […]

National Health and Medical Research Council (NHMRC) Draft Report “Read-a-Long” Part Three

We are now into the third week of the read-a-long, which means that the third and final instalment of the NHMRC draft report into ME/CFS is now available. It is […]

National Health and Medical Research Council (NHMRC) Draft Report “Read-a-Long” Part Two

We are now into the second week of the read-a-long, which means that the second instalment of the NHMRC draft report into ME/CFS is now available. It is available for […]

National Health and Medical Research Council (NHMRC) Draft Report “Read-a-Long” Part One

The long-awaited NHMRC ME/CFS Advisory Committee’s draft report has been released for public consultation. To encourage as many of us as possible to submit a response to the report, we’ve […]

National Health and Medical Research Council (NHMRC) Draft Report “Read-a-Long” Schedule

If you’re joining us for the NHMRC Public Consultation ‘read-a-long’ we’ve put together this detailed breakdown of the schedule. This is to give you a clear idea of when we […]

National Health and Medical Research Council (NHMRC) ME/CFS Advisory Committee Draft Report

NHMRC has released the ME/CFS Advisory Committee’s draft report for public consultation and feedback. The public consultation process will remain open until Monday February 18, 2019. You can read the […]