Published: 3 March 2026 Over 600,000 Australians living with ME/CFS and long COVID face gaps in education, research funding, and treatment access during Long COVID Awareness Week Emerge is marking Long COVID Awareness Week (March 9-15, 2026) with a series of national initiatives aimed at raising awareness and driving policy change for the over 600,000

Emerge Australia has heard from many people with ME/CFS and long COVID who are worried about upcoming changes to the National Disability Insurance Scheme (NDIS) planning process. These changes are called new framework planning.  These changes affect how current NDIS participants have their support needs assessed and how their funding is determined. They do not

Read the full February Newsletter Hello to all our supporters and readers of the Emerge Australia newsletter! Welcome to this first edition of our Emerge Australia Newsletter for 2026 and a belated Happy New Year to you all.   This edition is filled with lots of information on our work, opportunities and news. In the

Read the full December Newsletter Hello to all our supporters and readers of the Emerge Australia newsletter! In our final newsletter for the year, I want to first and foremost take this opportunity to thank everyone who has so loyally supported us in every way throughout this calendar year. To all our community donors, our

Read the full November Newsletter Hello to all our supporters and readers of the Emerge Australia newsletter! Hello to all our supporters and readers of the Emerge Australia newsletter! The last several weeks have been taken up with planning and executing our Action Forum, From Stigma to Science:  Educating for change.  You can read about

The Safer Shared Air: Making the Invisible Visible Conference 2025 brought together lived-experience advocates, scientists, policymakers and industry leaders to highlight why indoor air quality is fundamental to health, accessibility and inclusion. The event explored how the air we share can limit participation, especially for people with chronic conditions, and highlighted solutions such as improved ventilation,

Read the full October Newsletter Hello to all our supporters and readers of the Emerge Australia newsletter! It’s hard to believe we’re already in mid-October — Christmas is just around the corner, and our team is in full flight. I can’t recall a busier time! With just 8.4 full-time equivalent staff, our small but mighty

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.

Read the full September Newsletter Hello to all our supporters and readers of the Emerge Australia newsletter! We are delighted to bring you this action-packed September newsletter, filled with the latest Emerge Australia news and updates. Somehow, we’ve already reached the final quarter of 2025—and as always at this time of year, there is so

Read the full August Newsletter Hello to all our supporters and readers of the Emerge Australia newsletter! Hello everyone and thank you for your patience as we prepared this edition of the Newsletter.  We do apologise for missing the July edition however we do hope this one makes up for it. So, I want to

Survey for Aboriginal and/or Torres Strait Islander Survey for the CALD Community Our Work Over the Next 12 Months and Beyond   Emerge Australia recognises that the needs of people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and long COVID are not equally understood or met, particularly among Aboriginal and/or Torres Strait Islander peoples and Culturally and

Published: 8 August 2025 On Nightlife (ABC Radio), presented by Lisa Pellegrino on Friday, 8 August 2025, the first segment of the program delves into groundbreaking developments in understanding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). A major focus is the world’s largest genetic study of ME/CFS, which has provided compelling evidence that genetic factors play a significant role in