Listen to the Nightlife podcast Published: 11 August 2025 This study provides strong scientific evidence that ME/CFS has a genuine biological basis, on a large scale.  Thanks to the identification of genetic signals, this research offers those affected a hopeful foundation for future diagnosis and treatments.   Why is this study so important and exciting?

Published: 4 August 2025 Emerge Australia will pilot a Community Advisory Panel from August 2025. We were inundated with high quality nominations from a diverse range of community members. Over 30 nominees were selected as panellists. The Community Advisory Panel will initially advise only on Emerge Australia’s advocacy priorities. As the Community Advisory Panel evolves,

Published: 29 July 2025 Thank you to everyone who attended our recent live education sessions on Applying for the National Disability Insurance Scheme (NDIS) and Disability Support Pension (DSP).  We’ve received lots of positive feedback – many people told us the sessions were informative and easy to follow.   However, we also heard that the sessions

Published: 18 July 2025 Emerge Australia responds to Medical Republic article about American Heart Association recommendations on exercise and long COVID  Emerge Australia, the national patient organisation for people with myalgic encephalomyelitis, long COVID and other energy limiting diseases, joins Prof David Putrino and Assoc Prof Bernard Shiu, urging extreme caution in promoting exercise for

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.

Emerge Australia is excited to announce that our Research Director, Simone Eyssens, has been appointed to the National Health and Medical Research Council (NHMRC) ME/CFS Guideline Development Committee.  Australia’s clinical ME/CFS guidelines are over 20 years old. This committee is the culmination of more than 10 years of advocacy efforts by many in our community.

Published: 23 June 2025 If you would like to make a complaint directly to SBS regarding this episode you can do so here: Formal SBS complaint form Invisible, Misrepresented, and Harmed: ME/CFS Voices Demand Accountability from SBS A Joint Statement from Participants and Advocates in Response to the 20 May 2025 Episode of Insight This

Published: 13 June 2025 Our Call To The NDIA  We call on the NDIA to:  Reverse the decision to cap travel at 50% of the hourly rate; Price all allied health practitioners the same;   Prioritise equity and complexity in future pricing reform.  People with ME/CFS are forced to advocate persistently for recognition of their disability

Read the full June Newsletter Hello to all our supporters and readers of the Emerge Australia newsletter! It is hard to believe we are only weeks away from the end of the financial year which means we are already half-way through 2025. I don’t know about you but that is a scary thought – I

Read Emerge Australia’s response to the episode Published: 9 June 2025 Media correspondent Amanda Meade reports on the backlash following an SBS Insight episode about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Participants and advocacy groups, including Emerge Australia, have criticized the program for presenting a potentially harmful and unscientific narrative. The episode prominently featured an individual

SBS Insight program “Invisible Illness” Emerge Australia would like to express its concern, deep frustration and disappointment about the harmful narrative presented on Insight’s program that aired on SBS on Tuesday evening (20/5/2025) about Invisible Illnesses. Based on Insight’s positive reputation as well-researched, serious journalism, we promoted the episode to our community. We were pleased

ME/CFS Awareness Week 2025 Community member Miriam Adler penned a first-person piece about her life living with ME/CFS to coincide with ME/CFS Awareness Week. It appeared online in News.com.au mastheads ranging from the Herald Sun, Gold Coast Bulletin, Adelaide Advertiser and Daily Telegraph, among others. The article is behind a paywall, so we are reproducing it here.