Read the full June Newsletter Hello to all our supporters and readers of the Emerge Australia newsletter! Hello everyone and thank you for your patience as we prepared this edition of the Newsletter.  We do apologise for missing the July edition however we do hope this one makes up for it. So, I want to

Survey for Aboriginal and/or Torres Strait Islander Surevey for the CALD Community Our Work Over the Next 12 Months and Beyond   Emerge Australia recognises that the needs of people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and long COVID are not equally understood or met, particularly among Aboriginal and/or Torres Strait Islander peoples and Culturally and

Published: 8 August 2025 On Nightlife (ABC Radio), presented by Lisa Pellegrino on Friday, 8 August 2025, the first segment of the program delves into groundbreaking developments in understanding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). A major focus is the world’s largest genetic study of ME/CFS, which has provided compelling evidence that genetic factors play a significant role in

Listen to the Nightlife podcast Published: 11 August 2025 This study provides strong scientific evidence that ME/CFS has a genuine biological basis, on a large scale.  Thanks to the identification of genetic signals, this research offers those affected a hopeful foundation for future diagnosis and treatments.   Why is this study so important and exciting?

Published: 4 August 2025 Emerge Australia will pilot a Community Advisory Panel from August 2025. We were inundated with high quality nominations from a diverse range of community members. Over 30 nominees were selected as panellists. The Community Advisory Panel will initially advise only on Emerge Australia’s advocacy priorities. As the Community Advisory Panel evolves,

Published: 29 July 2025 Thank you to everyone who attended our recent live education sessions on Applying for the National Disability Insurance Scheme (NDIS) and Disability Support Pension (DSP).  We’ve received lots of positive feedback – many people told us the sessions were informative and easy to follow.   However, we also heard that the sessions

Published: 18 July 2025 Emerge Australia responds to Medical Republic article about American Heart Association recommendations on exercise and long COVID  Emerge Australia, the national patient organisation for people with myalgic encephalomyelitis, long COVID and other energy limiting diseases, joins Prof David Putrino and Assoc Prof Bernard Shiu, urging extreme caution in promoting exercise for

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.

Emerge Australia is excited to announce that our Research Director, Simone Eyssens, has been appointed to the National Health and Medical Research Council (NHMRC) ME/CFS Guideline Development Committee.  Australia’s clinical ME/CFS guidelines are over 20 years old. This committee is the culmination of more than 10 years of advocacy efforts by many in our community.

Published: 23 June 2025 If you would like to make a complaint directly to SBS regarding this episode you can do so here: Formal SBS complaint form Invisible, Misrepresented, and Harmed: ME/CFS Voices Demand Accountability from SBS A Joint Statement from Participants and Advocates in Response to the 20 May 2025 Episode of Insight This

Published: 13 June 2025 Our Call To The NDIA  We call on the NDIA to:  Reverse the decision to cap travel at 50% of the hourly rate; Price all allied health practitioners the same;   Prioritise equity and complexity in future pricing reform.  People with ME/CFS are forced to advocate persistently for recognition of their disability

Read the full June Newsletter Hello to all our supporters and readers of the Emerge Australia newsletter! It is hard to believe we are only weeks away from the end of the financial year which means we are already half-way through 2025. I don’t know about you but that is a scary thought – I