A longer than usual but very entertaining, deeply personal window into an inspirational and loving couple, sharing the beauty of being in relationship with your best friend, along with the grit and grief surrounding the impacts on families of invisible complex disabilities.
In this moving episode, Anne Wilson is talking with Jenny Meagher and her husband Pete. Jenny lives with ME/CFS. Before her illness became more severe, Jenny worked as a Speech Pathologist in education settings. Jenny’s involvement in ME/CFS advocacy began with the Millions Missing campaigns. She has a particular interest in political lobbying, and we are very grateful for her contributions Emerge Australia in a voluntary capacity.
Jenny’s husband, Pete cares for both Jenny and their adult daughter also living with ME/CFS.
The dynamic duo of advocacy for this disease! The ME/CFS community has benefitted so greatly from these two wonderful people and their family.
A fabulous sharing. So many things Tori and I could relate to. Thank you both.
I love the idea of a public apology in Federal Parliament and by the Australian Medical Association. Just imagining it sends shivers down my spine. Oh, the healthy tears that would flow from that!
Thankyou Jenny and Pete for this detailed, honest and balanced account of your journey with this awful illness. I think you have managed to convey the complexity of the devastation suffered by patient and life-partner together and separately – no small feat.
And I do think your work towards a public apology is a brilliant, most innovative idea – were such an apology granted it would fast track healing of patients’ and families’ low morale, and I believe, it would create a flow-on effect in terms of the woeful lack of services available to the ME/CFS patient population.
Thanks Ann and Emerge for this important interview and all the work you do ????????????????